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We'll be riding the Pass' Portes du Soleil MTB marathon at the end of June, along with Chris Long and Liz Leyland.  The 80km route takes in the spectacular scenery of the French and Swiss Alps.

Charcot-Marie-Tooth Disease is also known as Hereditary Motor and Sensory Neuropathy. Anyone who knows about CMT knows just how devastating it can be. It may not be a death sentence, but it is a life sentence in that every single task and every single thing we do is affected by it. This neurological muscle wasting disease causes muscle wastage in the lower legs/ feet and arms/ hands. It causes poor co-ordination, loss of balance and strength in the arms and legs as well as reduced sensations.  This degenerative condition affects individuals in different ways and whilst some may retain mobility throughout, many others sadly depend on walking aids and even become wheelchair bound.

Currently, there are no disease specific treatments to either halt the progression or cure CMT, but the condition is managed by physiotherapy, orthotics, occupational therapy, pain and fatigue management and when indicated orthopaedic surgery, speech therapy, etc.

Funding for research into effective treatments and eventually a cure is of vital importance to give future generations the chance of a normal life.  For more information on the condition and current research, please visit the CMT UK website.