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Kathryn Williams avatar
Kathryn Williams

Aaron's plagiocephaly journey

doing various fundraising events for Headstart4Babies because they are a small charity who don't get much help

20 %
£616.30
raised of £3,000 target
by 21 supporters
Donate

Headstart4Babies

Headstart4Babies is a small charity raising awareness of plagiocephaly and brachycephaly, two little-known skull conditions which can affect young babies. It also provides help and advice to families face with the condition and raises money to assist families on low incomes to proceed with treatment.

Story

Updated on Nov 15th 2012 at 9:51 AM from the JustGiving API

Money from the afternoon tea now added, still a way to go though, anymore ideas?

Updated on Oct 15th 2012 at 11:19 PM from the JustGiving API

Afternoon tea tickets now on sale, £4 adults £2.50 children, email kat.loves.shoes@gmail.com for further information.

Updated on Oct 15th 2012 at 4:44 PM from the JustGiving API

Auction is going well, £150 so far with 11 days to go

Updated on Oct 12th 2012 at 11:26 AM from the JustGiving API

Sam Warburton signed Welsh training top for auction, see Facebook or twitter for details

Updated on Oct 11th 2012 at 10:51 AM from the JustGiving API

Thank you so much to all people who are kind enough to donate their hard earned money, your kindness shows that the world isn't as awful as people make it out to be

Updated on Oct 11th 2012 at 8:30 AM from the JustGiving API

Provisional date of 04/11 for fundraising afternoon tea, details to follow.

Thanks for taking the time to visit my JustGiving page.

My son aged 5 months was diagnosed with plagiocephaly (head flattening) during his 10 week check. He had torticullis (over tight neck muscle) and could only look left which was the cause of the flattening.

He was referred to a physiotherapist who included him, after an initial consultation, in a baby neck clinic. The exercises and repositioning has worked to cure him of the torticullis, however, the flattening is fairly severe.

My husband and I have been to vitality in motion in Cardiff for a consultation with our son and as he is so young, we have been advised of some alternative repositioning and cushioning techniques to try for the next 6 weeks, after which time we will be advised of whether star band treatment is necessary. This will be the end of November.

The cost of star band treatment is £2,000.00 and is not available on the NHS. The NHS claim the treatment is purely cosmetic and site this as their reason for not funding. Aaron's head on the left side has completely shifted forward in comparison to his right and there is a possibility this can affect his hearing and his jawline (making eating more difficult).

We contacted Headstart for Babies who agreed that if we fundraise for the charity, 75% of raised money will go towards Aaron's star band and 25% will be kept by the charity. Any money over and above the cost of the treatment from the 75% will also go to the charity.

Should in six weeks it be decided that Aaron does not need treatment. all funds will be donated to the charity so they can assist another family with treatment.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

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