Sue was diagnosed with MSA after 12 months of various tests and scans. MSA is a rare and devastating neurological illness that impacts on just about every part of our lives. Sue is currently struggling to cope with severely impaired mobility, speech difficulties and problems with using her hands, to name but a few of the issues. If you try to imagine being unable to walk, talk clearly or use your hands for everyday tasks such as writing, eating, turning the pages of a book etc. you might just get a glimpse of what her world feels like.
As her primary carer and soul mate it is heartbreaking to watch while this dreadful disease gradually robs her of everything that once made her life what it was. When I felt totally isolated and bereft the MSA Trust stepped in and offered us the support and information we needed. They sent information to our GP and other health care providers, most of whom had never come across MSA before. I would like to help other people to receive the valuable support that we have been offered, but this will only happen if the MSA Trust gets the funds it needs to carry out this vital work. Please, please donate generously. Thank you and God bless you.
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