Nicolene Van Niekerk

Niki running 21km for CJD

Fundraising for University College London Hospitals Charity UK
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Event: The Vitality Big Half 2020, on 1 March 2020
Participants: Candice Kruger
The Cure CJD campaign has been set up by a group of individuals, personally affected by the disease, to support the work of researchers & doctors at the MRC Prion Unit at UCL and NHS National Prion Clinic at UCLH. We are a fund within UCLH Charity.

Story

My dad, Charles, was diagnosed with Creutzfeldt-Jakob disease (CJD) in October 2019 after showing symptoms for about 1 year. Within 4 months my dad went from our cheeky, active and loving to a pre-comatosed state, not able to communicate or swallow in hospital and passed away in that hospital ben in March 2020. CJD is a cruel, fast progressing terminal brain disease of which the cause remains unknown. 

Please donate if you can to support us to find a cure for Creutzfeldt-Jakob disease (CJD). There is currently no cure but every day scientists and doctors are getting closer to finding a treatment. 

I never thought something like this could happen to someone I love, but it just makes you appreciate every single day of life on this earth. Lets increase awareness and help scientists get a treatment for CJD. 

About the campaign

The Cure CJD campaign has been set up by a group of individuals, personally affected by the disease, to support the work of researchers & doctors at the MRC Prion Unit at UCL and NHS National Prion Clinic at UCLH. We are a fund within UCLH Charity.

About the charity

We're the official charity supporting patients, staff and research at University College London Hospitals (UCLH) NHS Foundation Trust. We focus on four main areas. Supporting patient care Training and developing staff Environment and equipment Advancing research.
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