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RARE GRILLS de Paor-Evans

RARE GRILLS 24 HOUR MARATHON BEAR CAST for THE ARTHROGRYPOSIS GROUP!

Fundraising for TAG
£653
raised of £1,000 target
by 38 supporters
Donations cannot currently be made to this page
TAG

Verified by JustGiving

RCN 1164158
We support those affected by Arthrogryposis to understand the condition and meet others

Story

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This 30th June at 5pm, I will start a marathon 24-hr non-stop bear cast, playing the finest in Hip Hop, boogie, electro and a dash of funk on original 7" and 45s only! My reason (apart from loving to spin 45s), is to raise money and awareness for TAG, the UK charity for Arthrogryposis, or AMC as it is also known. AMC is a rare congenital condition that affects approximately 1 in 10,000 births. Typically this condition affects joint movement in the limbs and may require a number of surgeries and consultations throughout childhood and adolescent years. 

The Arthrogryposis Group (TAG) offer local level support across the UK to people living with Arthrogryposis Muliplex Congenita (AMC) and their families. TAG provide information and support through social media and face-to-face events across the UK. These events and meetings offer excellent opportunities to meet others with arthrogryposis, their families and anyone involved in their care. These events are crucial to help connect and support families navigating the often unknown terrain of AMC. 

TAG also aim to promote awareness to broader society and the medical profession, as well as advice for new or expectant families of AMC children. 

For more information please see:

https://www.arthrogryposis.co.uk

About the charity

TAG

Verified by JustGiving

RCN 1164158
At The Arthrogryposis Group we are able to offer local level support to people living with Arthrogryposis Muliplex Congenita (AMC) or one of the 200 related conditions. We provide regular information and updates on care and treatment, and through our events we give excellent opportunities to meet others with arthrogryposis, their families and anyone involved in their care.

Donation summary

Total raised
£652.59
+ £112.50 Gift Aid
Online donations
£652.59
Offline donations
£0.00

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