Sophia lost her fight with Mitochondrial disease on the 22nd May 2015 at just 8 months old. My beautiful niece didn't get the chance to crawl, let alone walk or talk.  She fought without doctors, intervention and oxygen for a remarkable 5 days, showing her courage and strength before losing her battle to Mito.  Her short life of 8 months was spent in and out of hospital appointments, in intensive care or if she was at home, this was interrupted with daily medical visits and constantly being attached to oxygen, meanining family time was very limited.  There is no cure for Mitochondrial disease.  We had never heard of this disease until Sophia was extremely poorly, leaving our family with little understanding and support.  We were fortunate to find The Lily Foundation, aiming to give hope, answers and support to the many other children and families that face the challenges of this disease today. Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting. Please stand with us and fight Mitochondrial Disease and fight for hope.