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Daniel Hewitt

Daniel Hewitt

Fundraising for ROHHAD Association
£848
raised of £500 target
by 44 supporters
Donations cannot currently be made to this page
In memory of Luca Pucella
ROHHAD Association

Verified by JustGiving

RCN SC045645
We fundraise for ROHHAD Research & Support to improve survival rates worldwide

Story

If anyone had the pleasure to have met Luca
you would agree with me that he was unique and a little character!!

Luca was an amazing young 11 year old, he made u smile and laugh every time u saw him. He always used to give everyone massive hugs and he used to pull ur cheeks as well!! He was an absolute character with a very rare condition called ROHHAD which only 75 people In the world have. And Today at 12:48am he sadly lost the battle and passed away! So I have set up this fundraiser for all the other children with ROHHAD! Please could u spare a little cash for this charity ROHHAD it would be very much appreciated!! And I’m sure Luca will be smiling down on us!!

About the charity

ROHHAD Association

Verified by JustGiving

RCN SC045645
ROHHAD is a rare life threatening and life limiting condition affecting Children worldwide. The Charity mission is to - Fund and promote research leading to a new understanding of and treatments for ROHHAD, one day leading to a cure. We also offer support to those affected and raise vital awareness

Donation summary

Total raised
£847.78
Online donations
£847.78
Offline donations
£0.00

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