26 %
£263.67
raised of £1,000 target
by 9 supporters
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Matt Rowley avatar
Matt Rowley

Running 214 miles across Scotland for Alpha 1 Awareness UK

Fundraising for Alpha 1 Awareness UK

26 %
£263.67
raised of £1,000 target
by 9 supporters
Donate
  • Event: Ultra Great Britain 2017, 19 Aug 2017

Alpha 1 Awareness UK

We support and fund research to help Alpha1 (AATD) sufferers in the UK

Charity Registration No. 1125467

Story

I am running 214 miles across Scotland to help raise money and awareness for the charity Alpha 1 Awareness UK and the condition alpha-1 antitrypsin deficiency.

Alpha 1 Awareness UK work to support and educate those with Alpha-1 antitrypsin deficiency (AATD). The charity brings those who have AATD together so they can share their experiences and be a support system for one another. The charity is also working to get treatments that are present in Europe and the US available to AATD sufferers in the UK.

AATD is a lack of the protein alpha-1 antitrypsin (ATT) which is produced in the liver. The main role of AAT is to protect the lungs. A deficiency can lead to life threatening lung and/or liver disease.

My Mum has AATD and as a result has had two lung reduction operations to help her breath more easily and to give her a better quality of life. Without others in the past supporting research for AATD I doubt she would be with us today.

Race Details: http://www.gbultras.com/ultra-great-britain-2018/

Date: 18th – 22rd August 2018





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