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George was born extreme medical conditions, his bowel wasn’t fully formed, he had two holes in his heart and the main complication was his oesophagus did not meet his stomach. There was a gap. But it was also attached to his airway. This is very complex.
Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions of the oesophagus (food pipe) and/or trachea (airway) that affect one in every 3,500 babies.
George’s parents, Sophie and Ritchie are trying to raise £25,000 to fund a parents education room; to provide a welcoming environment for parents of babies with complex issues to learn how to care for their baby. Including trachy care, CPR, stoma training and feeding, amongst some of the things.
Please dig deep and help me raise money for ‘Super George’ and for the hospital for saving his life. I want to help raise £1,000 towards this room. The room is to be named after him, and will be a lasting legacy at the hospital.
Throwing myself out of a plane is a pretty scary thing to do, and I can’t say I’m looking forward to it! But I couldn’t say no to this brave little boy, and the support of his parents and family.
Thank you for
At just six hours old he was transferred by ambulance to Nottingham’s QMC hospital from Derby. It was 50/50 whether he would survive the journey.
At 13 hours old George had major surgery which saved his life. He was in the Neonatal Intensive Care Unit for a month. Sophie and Ritchie lived there in a parents room. They couldn’t hold him for five days which was heartbreaking for them. They stayed by his side from 8am often until 11pm/midnight.
George had a stoma created. He went home with a feeding
tube in his nose which went straight to his tummy. George was fed through this for a few months.
George’s parents, Sophie and Richie were trained in
CPR, for a baby with a trachy, stoma care and the feeding whilst in NICU, but as there wasn’t a special room, it was done in staff rooms, on the unit, and in any spare room.
After a week at home, George deteriorated very quickly. To summarise a horrific situation, George was ventilated and sedated for two days before an emergency tracheostomy operation was performed at QMC. His airway had shrunk to the size of a pin head. If they hadn’t taken him in that Sunday evening to A&E he would have
died. George needs 24/7 care.
George needs 24/7 care. They were told the trachy would
be in for 2-5 years which was a daunting prospect. However, after visiting Great Ormond Street Hospital, the amazing surgeon said he would perform the surgery when he was one. He is due to be operated on just after his first birthday. He will be asleep for a week, and then in hospital for a further week to recover.
In the last year George has had 15 operations. Many were dilatations of his oesophagus - in effect, stretching it as the repair site shrinks when healing. They were weekly, then fortnightly, and now he hasn’t needed one for months.
The trachy reversal and reconstruction of his airway is a huge operation, and it’s a scary time. But Super George has overcome everything amazingly so far. His two holes in his heart are closing on their own! And George has learnt to override his trachy, and can chat and babble, laugh and cry! This is just incredible and unbelievable.
George has been through so many scary ordeals, and been admitted to QMC’s Paediatric Intensive Care a number of times with bronchiolitis, and other viruses of his airway.
Sophie and Ritchie are trying to raise £25,000 to fund a parents education room; to provide a welcoming environment for parents of babies with complex issues to learn how to care for their baby. Including trachy care, CPR, stoma training and feeding, amongst some of the things.
More information about Super George’s Army Fundraising Appeal is available at Justgiving.com/teams/SuperGeorgeArmy. On Facebook
you can visit Super George’s Army Fundraising Appeal page, and on Twitter, follow @SuperGeorgeArmy.