328 %
£822.40
raised of £250 target
by 36 supporters
Donate
Steve Moore avatar
Steve Moore

Virgin London Marathon

Fundraising for Fanconi Hope

328 %
£822.40
raised of £250 target
by 36 supporters
Donate
  • Team members: Anne
  • Event: Virgin London Marathon 2017, 23 Apr 2017

Fanconi Hope

Fanconi Hope is a charity set up to sponsor research and support those affected by the rare genetic disorder Fanconi Anaemia that affects children and adults, leading to bone marrow failure and bone marrow transplantation, with very high risk of leukaemia and head and neck cancers.

Charity Registration No. 1126894

Story

Fanconi Anemia is a rare life limiting genetic disorder causing bone marrow failure in children which predisposes them to cancer. My cousin Hannah was diagnosed with this condition at birth and has been through many hospital stays involving heart surgery, a bone marrow transplant, blood transfusions and extensive hip and pelvic operations. Through this Hannah has grown to become a brave, funny and caring little lady of 10 who loves life and our extended family are so grateful to Fanconi Hope for their support and research. This research has led to better treatments which in some cases can increase life expectancy into adulthood.

Anne and I are delighted to have the opportunity to raise much needed funds for Fanconi Hope and thanks for taking the time to visit our page.

Photos

1

Supporters

36