TEXT KURR54£2, £5 or £10 TO 70070
So a few words on the wee little man namely Kurran Doal. Born on the 24th June 2003, premature by around 2 months. Born in Princess Alexander Hospital in Harlow. All perfectly fine until 2 days into birth the paediatricians noticed that Kurran’s bowels were not as they should seem. He had a minor infection commonly known as Nectrotizing Enter Colitis or NEC for short. The doctors assured us that a strong course of anti-biotics should sort the problem out. It didn’t work and within 10 days Kurran was transferred to the Royal London Hospital under SCUBU.
We stayed there for 2 years and not a single day of respite. Two Christmases and two New Years passed. We celebrated Kurrans Birthday in hospital and t was heart breaking. I also had my daughter who is 9 months older than Kurran so the double whammy of raising her in a hospitalised environment didn’t make life any easier.
The constant infections to his bowel continued and this meant that Kurran had to be opened up repeatedly to have large parts of his intestines removed. No less than 11 major operations followed to remove the infected parts of the small intestine which left Kurran with approximately 10 inches of small intestine and fighting for his life. As a direct result of being bed ridden and never really eating orally, Kurran then developed other complications which in short meant he had no physical strength to sit upright to crawl or to walk. He also has mild CP which means he has little or no control of his muscles particularly his lower limbs were he has a high level of spacticity. To add further, he lost all of his hearing because of the varied amounts of drugs he had to take to over come the infections one of which was Gentamicin. He was always in pain and had to take Morphin on a regular basis to subdue this pain.
We were eventually discharged around 2005. The doctors said that Kurran would struggle to sit upright and walk. He would always need support. He had so many issues with his mobility that we had to carry Kurran from pillar to post most of which was done by my wife and I. He stayed on Neocate Milk for several years fed through a gastro tube and never really ate orally. We applied for a Unilateral Cochlea implant to overcome his hearing issue and to our surprise Dr Rajput from GOS agreed despite Kurran being of older age. Cochlea Implants are generally carried out on kids at a very young age although Kurran was the exception. He was implanted in September 2007 and I will never forget the first time he was switched on!!! He heard everything and his eyes were like a rabbit in headlights. He could hear but couldn’t interpret the sounds but eventually through intensive AVT and Speech Therapy he managed to hear his first sound – a door bell approximately 6 months after implantation.
We pushed and pushed Kurran to stand and walk and eventually 5 years later, Kurran took his first steps independently. This small miracle was now unfolding and he could hear, listen and walk. He was also eating orally and eventually the Doctors closed his gastro peg . He was in an awful mess but we as a family are believers. We are not religious by any means, all we had was our faith and the inspiration from others around us. We had faith in our own abilities that one day he will heal and do all the things that the doctors defied.
He is now 12 years of age, standing upright and walking and talking a lot. He’s not perfect but we battle on like all parents. The therapies are intensive and very expensive but we have no choice if we are to make Kurran a true gentle man. Written by Avy, Kurrans dad.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.