I have known Sam and Richard for many yeah and you would struggle to meet two more friendly, kind and generous people. For some time I have been trying to find a way to help Thea’s trust and do something challenging to really push myself and raise awareness and money for the trust.
I am not super fit and last I was classed as obese I have managed to lose some weight training and taking part is four of these type of events last year. They are really fun and get to meet some really nice people along the way so I figured what a great way to raise some money.
If you haven’t hear for these event or don’t know what is involved I will do my best to explain them to you.
Yorkshire Warrior http://yorkshirewarrior.com/ is 10 miles across the Yorkshire countryside with hills, bogs, 200 meter river walk, 800 meter underground tunnel, fire, ice bath, barbed wire, electric fence, log carry, crawling and climbing over 30 obstacles.
Total Warrior http://www.totalwarrior.co.uk/ is a 12km race with 30 punishing obstacles including the peaks of pain, the shocker, human BBQ, the plunge, and death valley to name a few and some kind of clay/mud/quicksand that can sap your strength with every step.
The Dirty Weekend http://www.ratracedirtyweekend.com/ is by far the longest race over 20 miles and 200 obstacles all of which are designed to push your limits from you first step to your last.
14 x Tough Mudder’s https://toughmudder.co.uk/ is a team-oriented 10-12 mile (18-20 km) obstacle course designed to test physical strength and mental grit. Tough Mudder puts camaraderie over finisher rankings and is not a timed race but a team challenge that allows participants to experience exhilarating, yet safe, world-class obstacles they won't find anywhere else.
No 14 x is not a misstate I intend to take part in the 7 UK Tough Mudder’s across the country on both Saturday and Sunday so that’s 2 races per weekend. This is where the real challenge lies running one of these is hard enough for most people but getting up the next day and doing it again is a whole other obstacle.
This is all for a great cause.
Thea’s Trust is a registered charity raising awareness & vital funds to support families & children with MPS, a rare and life limiting genetic condition.
Thea was born on July 23, 2013. Six months later,
she was diagnosed with MPS I Hurler Syndrome. This very rare genetic disorder
occurs in roughly 10 in a million children.
Most symptoms of MPS I appear between seven months and three years. At this point, Thea’s growth and development would stop and she’d begin losing her ability to walk, talk and all the other things children her age would normally do. She’d eventually lose all neurological function and have a life expectancy of just 9 or 10 years old.
Since her diagnosis, Thea has undergone vital ERT (enzyme replacement therapy), chemotherapy and a bone marrow transplant at Manchester Royal Children’s hospital. We’re incredibly lucky that the consultants there are world-leading specialists, and we’ve been amazed at how much they, and the NHS in general, have been able to help Thea so far.
Thea tragically passed away on the 10th May 2014, she fought so hard but could not overcome multiple complications throughout her treatment and died peacefully in mummy's arms.
We will remember her always and she will live on in our hearts as will her Trust!
Registered in England 9002666
Registered Charity No 1158051
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.