Thanks for taking the time to visit our Just Giving page.

This page has been set up in memory of our Dad, John Williams,  who passed away on Wednesday 23 November. For many years Dad was severely disabled by this crippling and debilitating rare disease - Inclusion Body Myositis (IBM). Currently there is no cure and very little knowledge of the cause. It is a disease of the muscle which cause the muscles to become thin and weak. It is not known how many people in the UK are affected,  but most GP's have never looked after patients with this condition and many doctors have not heard of it.

Over the years Dad's muscle strength slowly and gradually declined with all of his limb muscles being affected - either weakening or simply just stopped working. To say he suffered is a gross understatement - but he never gave in to it. He fought it to the end.

As a family we took care of Dad at home, Mum being his main carer despite having health issues of her own. The three of us supported her in caring for him - there was nothing we couldn't, or wouldn't, do. He had professional home carers too but Mum took the brunt of the care - being on duty 24 hours a day. It was a demanding job. 

So we are determined to do all we can to help others with this disease and those who care for people with this disease. 

We look forward to the day when there is a cure and Inclusion Body Myositis is something everyone has heard of. Please help that journey for current and future sufferers and their carers. This is the greatest way we can honour the memory of our Dad who would have been so up for this. 

Thank you!

Ann, Mark and Neil Williams




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