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Ashley Hobbs avatar
Ashley Hobbs

Ashley's page

Raising awareness for Bardet Biedl Syndrome for BBS UK because My son Oliver has this syndrome

715 %
£1,430.73
raised of £200 target
by 56 supporters
Donate

BBS UK

BBS UK is a charity providing support and information for those with Bardet-Biedl Syndrome, their parents/carers. BBS UK produces information leaflets, newsletters, a family conference, family days and activity weekends. Further information and contact details are available at www.lmbbs.org.uk

Charity Registration No. 1027384

Story

As most of my lovely family and friends know my little boy Ollie has been diagnosed with a syndrome called Bardet Biedl syndrome..

Bardet-Biedl syndrome is a disorder that affects many parts of the body. The signs and symptoms of this condition vary among affected individuals, even among members of the same family. This is a very rare condition and awareness is very low and medical studies aren’t what they could be. In May myself and lots of friends are taking part in tough mudder. It would mean so much to my little family if you could sponsor me and help this charity to continue to support us as a family and keep medical studies going. My little boy is almost definitely going to lose his eye sight but I’m praying and hoping that in the near future there may be something out there that could stop this... so please if you can spare a few pennies it would mean SO much xxx 

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