Thanks for taking the time to visit my Just Giving page.

Blair was born in September 2009 and shortly after was diagnosed with Congenital Central Hypoventilation Syndrome or CCHS. He spent a long time in hospital and finally had his first night at home in April 2010.  The afternoon tea is to celebrate 10 years from that first night. 

Tickets are £5 (Suggested donation) for afternoon tea. Prosecco & wine available for a small additional donation. 

We will also be holding a raffle and will update you with some great prizes soon. 

Hope to see you there

Thanks Gail


http://www.glasgowchildrenshospitalcharity.org/

https://www.justgiving.com/fundraising/blair-devenny

Blair's Story

I was born on 29th September 2009 and soon after diagnosed with Congenital Central Hypoventilation Syndrome (CCHS), which means that I need support from a ventilator to help me breath, and Hirschsprung's disease which is often associated with CCHS, which arises when certain nerve cells in the gut (called ganglion cells) fail to develop and mature correctly. The result is a section of bowel that is essentially paralyzed.) Following two operations this has now been surgically corrected.

I was in Yorkhill for a long-time after I was born, for a while I would come home during the day and then started getting some overnight stays and was delighted when I was finally discharged in the summer of 2010.

Since then I have grown lots and am now doing all the things you would expect.  In August 2014 I started at Broomhill School and I am loving working hard and playing all my friends.  I love playing with my brothers, cousins and friends and generally always have a big smile on my face :-)

I am still a regular at The hospital, mostly for outpatient appointments but without the dedication and support of all the staff there I would not be the little boy I am today.

Everyone at Yorkhill and the Children’s Hospital have provided amazing Support both when I was an in-patient over the years since I’ve been home. We have also met lots of really amazing kids and families during our time at in hospital  and so want to raise funds to say thank you and to help all the other babies and boys and girls who need to spend time at Hospital, especially the other kids that need ventilators when they finally go home, like me.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Big thanks,

Blair

xxx

Details of previous Fundraising events:

Afternoon Tea for CCHS Day 2017

To celebrate international CCHS we hosted an afternoon tea on Sunday 12th November 2017 for the Glasgow Children’s Hospital Charity and the CCHS support group.  Raising over £3000!!! 

Bucket challenge 2014

Thank you to everyone who has nominated, particpated and donated to our page as part of the ice bucket Challenge brrrr Together we raised almost £200! well worth the dookin!

43rd Glasgow Beavers, Cathcart

Raised over £200, a big thank you to all the Beavers for your hard work. 

Glasgow 2014 Slim

Marina Turner and Shonagh MacVicar from Glasgow 2014 decided to do a sponsored slim, and very kindly offered to donate the funds raised to Yorkhill.  A Big thanks to Marina & Shonagh, everyone who is supporting them and sponsoring them.

Crofthead Holiday Park, Ayr 2012

Long supporters of Yorkhill, family friends at Crofthead are hosting two events in support of Yorkhill this summer. The first is a family fun day on 22 July and the second is a Race Night on 20August in Ayr Rugby Club (tickets are still available; please contact me for more details). In addition, Lewis McCormack and his friend recently raised £130 from making and selling benches and selling football raffle tickets, a special big thank you to them.

Clisham Keel at The Rock, Glasgow on 11 Feb 2011 was a great success, and thanks to the band donating their fee and all the support for the fantastic raffle we raised over £1500. So a huge thanks to everyone for their continued support.

Thanks to everyone who supported our Family Fundraiser on 25th September 2010, Blair certainly enjoyed his first disco! and I think everyone else did too!

Our first fundraiser, 'Brenda Sings for Blair' held on 13th August 2010 was possible thanks to all the help and support of many people, but especially May Mullen, a fantastic night was had by all and a huge amount of money was raised.

Thanks to everyone who has supported us so far ....