It is still a wonder to me, and source of so much pride and emotion, that Alice is remembered every year at our carol service. She suffered a great deal in her short life, but she also achieved so much, signing her record deal with Sony and releasing her debut album Daydreams to critical acclaim in 2002. It has always been our family’s hope that we can use what she went through to help make a better future for the thousands of people who suffer now from cystic fibrosis, and for
their families who support and care for them.

You may have read about the incredible advances being made in the treatment of cystic fibrosis, particularly in the form of Kaftrio, a drug which is helping to keep infections down in a great number of CF sufferers. It may sound sometimes as though the battle has been won. I wish it had been, but it has not. Not everyone responds well to Kaftrio; lung damage itself can be halted, but not reversed; and even if the lungs do not deteriorate, other organs such as the kidneys or liver still get worse over time. Finally, although the increased longevity and quality of life for those with CF is to be hugely welcomed, with longer lives come other difficulties to overcome; for instance, how to plan for the workplace or families whilst keeping up with the burden of daily treatment.

The Cystic Fibrosis Trust still desperately needs your support, and by donating you will be helping to make a better life for so many people.

My family and I, along with all the committee of Carols by Candlelight, hope you can join us, either in person on 16 December, or for the virtual Premier on 23 December.

I hope you will enjoy being part of this year’s celebration, the nineteenth service held in Alice’s memory.

Best Wishes, Luke Martineau

Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.