Chantelle Dann
Chantelle Tough mudder Clapham Common page
Fundraising for Cystic Fibrosis Trust
Story
Hi all, thanks for visiting our just giving page, this autumn me and a group of my awesome colleagues from Bluebird care Bromley and members of our families will be taking part in our first ever tough mudder event on Saturday 13th October. Our team members: Lee Hilton-Dann, Aysen Hulusi, David Black, Danni James, Paul Tookey, Shireen Vernege, Keith Vernege, Ismail Ali, Shaunette Marshall, Nigel Marshall, Channon Charles, Ben Davie, Leah Tickle, Charlotte Gore & Chantelle Dann.
Please could you also check out #orkambinow on Twitter and Facebook as there are life saving medications available now, but NHS England & Vertex Pharmaceuticals are yet to reach a deal on pricing over two years since Orkambi has been licensed and 200 CF suffers lives have been lost, while these big bosses fight over money.
I’d like to share my story with you on why I chose to support Cystic Fibrosis Trust.
Hi I’m Chantelle and although I don’t have CF (Cystic Fibrosis) CF has been a massive part of my life, as my mum has Cystic FIbrosis a life threatening and life shortening genetic illness. My mum was faced with being a single parent to me after losing my dad in a devasting road traffic accident, he was taken from us through no fault of his own, before I was born.
At this time my mum was hospitalised with double pneumonia during her early stages of pregnancy with me, which she faught hard to recover from to save both our lives.
Growing up with a parent with CF wasn’t easy, being only young I never understood why I had to leave my mum in hospital so often, spending long periods of time apart was really confusing and sometimes very distressing for us both. The uncertainty of my mums illness is still so very hard to take in even now.
But I was very fortunate to have had amazingly strong grandparents that had walked the CF journey with my mum all her life and they were and still are very supportive to us both, although our Hero my grandad passed away two years ago his love and support will always be with us. My nan and grandad would look after me and take me to visit my mum when she was in hospital, which were month long stays at times.
Living with the knowledge that my mum has such an unpredictable progressive illness has taken its toll on us over the years, but we have learnt to live, laugh & love through it all. I know I’m very blessed to still have my mum/best friend and for her reaching the age of 46 as many CF warriors gain their wings far too young.
Watching my mums undeniable strength and determination to battle a life of reoccurring chest infections, having faced Pneumonia on four separate occasions during her life, intravenous antibiotics, daily physio therapies, life changing surgeries, countless hospital stays and facing losing many friends and her brother, my uncle Matthew who passed away at only 3 years old with Cystic Fibrosis.
But we hope and pray that one day a cure will be found for Cystic Fibrosis and that nobody else will have to lose their children- mothers- fathers-sisters or brothers to this cruel illness ever again.
My mum has been my biggest inspiration throughout my life and I’m more than proud to have this strong, courageous woman as my mum & best friend.
So I’ve chosen Tough Mudder as our challenge, with all it’s obstacles to symbolise the fight our CF warriors face every day and with new innovative precision medications advancing fast, we are on the cusp of new breakthroughs which we pray will bring a cure to end this dreadful disease.
So please donate as little or as much as you possibly can to support Cystic Fibrosis Trust. Our deadline is right upto the end of the day on 13th Oct... THANK YOU ALL SO VERY VERY MUCH FOR TAKING THE TIME TO READ OUR STORY Xx Xx Xx
#nomorecfangels #orkambinow
Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
Please could you also check out #orkambinow on Twitter and Facebook as there are life saving medications available now, but NHS England & Vertex Pharmaceuticals are yet to reach a deal on pricing over two years since Orkambi has been licensed and 200 CF suffers lives have been lost, while these big bosses fight over money.
I’d like to share my story with you on why I chose to support Cystic Fibrosis Trust.
Hi I’m Chantelle and although I don’t have CF (Cystic Fibrosis) CF has been a massive part of my life, as my mum has Cystic FIbrosis a life threatening and life shortening genetic illness. My mum was faced with being a single parent to me after losing my dad in a devasting road traffic accident, he was taken from us through no fault of his own, before I was born.
At this time my mum was hospitalised with double pneumonia during her early stages of pregnancy with me, which she faught hard to recover from to save both our lives.
Growing up with a parent with CF wasn’t easy, being only young I never understood why I had to leave my mum in hospital so often, spending long periods of time apart was really confusing and sometimes very distressing for us both. The uncertainty of my mums illness is still so very hard to take in even now.
But I was very fortunate to have had amazingly strong grandparents that had walked the CF journey with my mum all her life and they were and still are very supportive to us both, although our Hero my grandad passed away two years ago his love and support will always be with us. My nan and grandad would look after me and take me to visit my mum when she was in hospital, which were month long stays at times.
Living with the knowledge that my mum has such an unpredictable progressive illness has taken its toll on us over the years, but we have learnt to live, laugh & love through it all. I know I’m very blessed to still have my mum/best friend and for her reaching the age of 46 as many CF warriors gain their wings far too young.
Watching my mums undeniable strength and determination to battle a life of reoccurring chest infections, having faced Pneumonia on four separate occasions during her life, intravenous antibiotics, daily physio therapies, life changing surgeries, countless hospital stays and facing losing many friends and her brother, my uncle Matthew who passed away at only 3 years old with Cystic Fibrosis.
But we hope and pray that one day a cure will be found for Cystic Fibrosis and that nobody else will have to lose their children- mothers- fathers-sisters or brothers to this cruel illness ever again.
My mum has been my biggest inspiration throughout my life and I’m more than proud to have this strong, courageous woman as my mum & best friend.
So I’ve chosen Tough Mudder as our challenge, with all it’s obstacles to symbolise the fight our CF warriors face every day and with new innovative precision medications advancing fast, we are on the cusp of new breakthroughs which we pray will bring a cure to end this dreadful disease.
So please donate as little or as much as you possibly can to support Cystic Fibrosis Trust. Our deadline is right upto the end of the day on 13th Oct... THANK YOU ALL SO VERY VERY MUCH FOR TAKING THE TIME TO READ OUR STORY Xx Xx Xx
#nomorecfangels #orkambinow
Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.