Our story with the childrens heart surgery from Col, Kelly, Corey and Rose. 

Our first ever involvement with the childrens heart surgery fund was with our son Corey  in 2013 when he was 7. Corey had a supraventricular tachycardia. This is where the heart rate suddenly starts beating at a very fast rate. Corey was on medication for a few years until he was big enough in size to have the operation in 2017. The operation was ablation therapy where they needed to burn the short circuit on his heart. The operation was a success. 

A few weeks after corey having his operation we found out we was having another baby. The pregnancy was all normal and Rose was born in December 2017. There was complications as soon as Rose was born and she spent the first week of her life in NICU ward at hull royal. She was transferred to LGI for more scans on test on her heart. We discovered that Rose had something called Hemitruncus. 

This is a very rare congenital anomaly. We was told Rose would have to undergo open heart surgery to try and correct this condition. On our first night at LGI we arrived very late and wondered where we would be able to stay. The nurses on the ward gave us a key to a room on the brotherton wing and they told us this room was ours for as long as we needed it. Rose underwent her heart surgery when she was 13 days old it was a 4 and half hour operation and she was too stay in hospital for a further 3 weeks afterwards to recover. Everything about our stay was made so much easier by the staff on the ward, the room we was given free of charge which essentially became our home for 4 weeks, and to both of the wonderful surgeons who worked miracles on both our children. 

We want to give something back to the charity so Col and 6 of his friends have decided to do a cub 90 challenge the full length of Great Britain riding from Lands end upto John o Groats. This is a tough challenge and we hope to complete it in 5 days, we will keep this page updated with our progress. 

Thanks for reading