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96 %
£290.00
raised of £300 target
by 11 supporters
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Daniel Wentzell avatar
Daniel Wentzell

Dan's Great South Run Page

Fundraising for The British Porphyria Association

96 %
£290.00
raised of £300 target
by 11 supporters
Donate
  • Team members: Jamie Wentzell
  • Event: Simplyhealth Great South Run 2018, 21 Oct 2018

The British Porphyria Association

It aims to improve the understanding of Porphyria, by reaching out to patients, relatives, doctors and medical staff, etc. Early diagnosis is vital if we are to improve the quality of life for those affected by it. It also provides a social support system for sufferers and their families

Charity Registration No. 1089609

Story

Thanks for taking the time to visit my JustGiving page.

I'm running to raise funds and awareness for the disease I carry - Porphyria.

Most people will know I carry this hereditary disease, but am lucky enough to have so far suffered very little from this much misunderstood illness.

Having taken carrying the disease for granted for most of my life as a - largely non suffering - carrier, I have been surprised and saddened to see the daily discomfort and hardship many people endure with Porphyria.

Hopefully raising awareness will help to improve public education, ongoing support, and treatment for those suffering with Porphyria.

Photos

1

Supporters

11