Thanks for taking the time to visit my JustGiving page.
I'm running to raise funds and awareness for the disease I carry - Porphyria.
Most people will know I carry this hereditary disease, but am lucky enough to have so far suffered very little from this much misunderstood illness.
Having taken carrying the disease for granted for most of my life as a - largely non suffering - carrier, I have been surprised and saddened to see the daily discomfort and hardship many people endure with Porphyria.
Hopefully raising awareness will help to improve public education, ongoing support, and treatment for those suffering with Porphyria.