Dystonia is an incurable and disabling neurological movement disorder that affects more than 40,000 people in the UK. Even though dystonia is estimated to be about ten times more common than motor neurone disease, and the third most common neurological disorder, many people have never heard of it.
Until recently, many GP's were unfamiliar with dystonia. In the last few years, medical awareness of dystonia has increased greatly and the outlook for people with dystonia is improving. The Dystonia Society, a registered charity, devotes much time and many resources to fund research and promote awareness among medical professionals and public alike.