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£330.00
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Ed Derbyshire avatar
Ed Derbyshire

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I am running to raise money for ACT for SMA because I am Sophie's grandfather

66 %
£330.00
raised of £500 target
by 10 supporters
Donate
  • In memory of: Sophie Harling
  • Event: Great South Run 2017, 22 Oct 2017

ACT for SMA

The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

Charity Registration No. 1133272

Story

I am running in memory of my granddaughter, Sophie, who passed away last year. She was affected by SMA type 1 but remained a bright clever and funny little soul all her life. By running for ACT for SMA I am trying to raise funds to support other affected parents and children who battle this genetic disorder. And, of course, I run directly for Sophie. 

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Supporters

10