I am running in memory of my granddaughter, Sophie, who passed away last year. She was affected by SMA type 1 but remained a bright clever and funny little soul all her life. By running for ACT for SMA I am trying to raise funds to support other affected parents and children who battle this genetic disorder. And, of course, I run directly for Sophie.
I am running to raise money for ACT for SMA because I am Sophie's grandfather
The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS
Charity Registration No. 1133272