I am running in memory of my granddaughter, Sophie, who passed away last year. She was affected by SMA type 1 but remained a bright clever and funny little soul all her life. By running for ACT for SMA I am trying to raise funds to support other affected parents and children who battle this genetic disorder. And, of course, I run directly for Sophie.
I am running to raise money for ACT for SMA because I am Sophie's grandfather
The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties
Charity Registration No. 1133272