66 %
£330.00
raised of £500 target
by 10 supporters
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Ed Derbyshire avatar
Ed Derbyshire

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I am running to raise money for ACT for SMA because I am Sophie's grandfather

66 %
£330.00
raised of £500 target
by 10 supporters
Donate
  • In memory of: Sophie Harling
  • Event: Great South Run 2017, 22 Oct 2017

ACT for SMA

The Ally Cadence Trust provides emotional and financial support to children affected by Spinal Muscular Atrophy Type 1, the leading genetic killer of under 2's with an average life expectancy of just 8 months. Children with SMA have very limited movement and may have breathing difficulties

Charity Registration No. 1133272

Story

I am running in memory of my granddaughter, Sophie, who passed away last year. She was affected by SMA type 1 but remained a bright clever and funny little soul all her life. By running for ACT for SMA I am trying to raise funds to support other affected parents and children who battle this genetic disorder. And, of course, I run directly for Sophie. 

Photos

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Supporters

10