I have Osteogenesis Imperfecta (OI) type-III. This condition is commonly known as Brittle Bones. I'm 38 years-old and have fractured about 300 times (you loose count after 150) - I've even fractured ribs when I've had the hiccups! I've had 28 operations to fix various bits and bobs, insert enough metal to explode the metal detectors at airports, etc.!
2018 marks the Brittle Bone Society's 50th birthday. The Society do so much to help people with OI, their families and professionals.
When I was born, I was given 2-3 months to live - as many people with OI are. My mother doesn't know what she'd have done without the support of the Society, especially the Society's founder (Margaret Grant, MBE), in those first few years. Not only has the Society helped me with the purchase of equipment (for example, wheelchairs), they've also been there to offer advice and support - I remember the Society's Occupational Therapist coming to talk to staff at the mainstream secondary school I was about to start. Each year, the Brittle Bone Society holds a conference and AGM (the 2018 one will be in Dundee - the Charity's 'birthplace'). These conferences are great opportunities to learn about the latest medical developments and equipment, and also share stories (such as the silliest fracture - mine has to be a rib I broke laughing!) with other people with the condition.
I wanted to mark the Society's 50th birthday by doing something special, and raising a little bit of money (hopefully!). I started to think about ways I could challenge myself, and raise some money in the process. Exercise is important for people with OI - it helps mobility, increases muscle mass thus protecting bones, helps to keep the lungs clear, etc. I try to exercise every day - I have some 2kg weights, I do 20 sit-ups and 20 press-ups (although not 'real' ones as I keep my knees on the ground), as well as chest, shoulder and hip physio. I got to thinking 'what could I do 50 of?' I chose sit-ups as I can do these relatively easily, and even with a minor fracture (although I am regretting the idea of 50 sit-ups a day for 50 days!). I plan to start my challenge on 1 January 2018. I'm going to record myself (although it won't be pretty - I'll be going a funny colour and making weird noises), and put these on social media with the hashtag #BBSChallenge50!
So, that's it! Please sponsor me, help me to raise as much money as possible and help the Society to assist people affected by OI for another 50 years!
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