63 %
£317.00
raised of £500 target
by 16 supporters
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Luke Barden avatar
Luke Barden

Ella 's Skydive

Jumping out of a plane for Amy and Friends because Without them we would be so alone.

63 %
£317.00
raised of £500 target
by 16 supporters
Donate

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746

Story

As you are already aware my daughter Ella and our unborn daughter has been diagnosed with cockayne syndrome, a rare, recessive genetic disorder which causes premature ageing and leads to a shortened life expectancy.

We are raising money by jumping out if a plane on the 1st September from around 15,000ft (approx. 2 miles high!) Falling at 120mph, we will descend to 5,000ft in around just 40 seconds, where our instructor will open the parachute and fly you safely back to earth! We'll have around 6 minutes under the parachute to enjoy breathtaking and unique views of the local area. 

This money will be going to Amy and friends for the medical conference this year.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Photos

2

Supporters

16