Luke Barden

Ella 's Skydive

Fundraising for Amy and Friends
£317
raised of £500 target
by 16 supporters
Donations cannot currently be made to this page
Amy and Friends

Verified by JustGiving

RCN 1119746

Story

As you are already aware my daughter Ella and our unborn daughter has been diagnosed with cockayne syndrome, a rare, recessive genetic disorder which causes premature ageing and leads to a shortened life expectancy.

We are raising money by jumping out if a plane on the 1st September from around 15,000ft (approx. 2 miles high!) Falling at 120mph, we will descend to 5,000ft in around just 40 seconds, where our instructor will open the parachute and fly you safely back to earth! We'll have around 6 minutes under the parachute to enjoy breathtaking and unique views of the local area. 

This money will be going to Amy and friends for the medical conference this year.

Thanks for taking the time to visit my JustGiving page.

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So please dig deep and donate now.

About the charity

Amy and Friends

Verified by JustGiving

RCN 1119746
Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Donation summary

Total raised
£317.00
+ £68.00 Gift Aid
Online donations
£317.00
Offline donations
£0.00

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