On February 26th 2014 we got the news that Cormac had Muscular Dystrophy, it took a further 8 weeks to have it confirmed as Duchenne Muscular Dystrophy (DMD).
There is currently no cure or proven treatments - Cormac is likely to require a wheelchair full-time by the age of ten and the condition will eventually attack the heart and diaphragm. It's now a race against time to find a treatment for this condition before it's too late. It is believed that this will be either the last generation to die from Duchenne or the first to survive it - please help make it the latter.
Please take time to watch this clip for more information
The current life expectancy is around 27 although there are still children as young as 10 dying from DMD - there's no way to predict the progression and there's no national funding programme for research - Everything relies on charity funding.
We've chosen to raise money for Harrison's Fund, they are part of the Duchenne Alliance so all money raised will go to research projects around the world see http://www.duchennealliance.org/ for details. This video is about Harrison and his family but it could just as easily have been made about us. Harrison's Fund through the Duchenne Alliance will help all boys with Duchenne.
Your donation is important, what's just as important is DMD awareness. So we are asking you to spread the word by joining us in fundraising and joining our team page to cast the net as wide as possible.
We know there are so many worthy charities all competing for your time and money, even if you donate the price of a morning coffee and no more we will be eternally grateful, if you can do more then even better.
The clock is ticking for Cormac and boys like him, help put this condition into the history books and make time to cure Duchenne.
You can also donate via text to 70070 DMDM66 £amount e.g. DMDM66 £5 for a £5 donation - please remember to follow-up the next text to add 25% gift aid.
A final clip
Thank you for your time, your donation and your thoughts.