I am raising money and awareness for this charity as I suffer from this condition myself.
Fern's Ferns swim challege
I'm swimming 22miles in 12 weeks for BBS UK because I have the condition and to raise awareness
BBS UK is a charity providing support and information for those with Bardet-Biedl Syndrome, their parents/carers. BBS UK produces information leaflets, newsletters, a family conference, family days and activity weekends. Further information and contact details are available at www.lmbbs.org.uk
Charity Registration No. 1027384