It's been a while since I've done any physical activity to raise money for A Smile for a Child.
I'm heavier than ever. I'm more unfit than ever.
So this is the obvious time to set myself a small challenge. This might not seem like a challenge to most, especially given the things I have attempted in the past, but for me right now it will be a stretch and then some.
I aim to run 2 miles every day for forty days.
Please sponsor me as much or as little as you like. Motivation will be a challenge for me, so knowing that I'm raising money, I hope, will give me the kick up the bottom I need to get out of the door.
See you in thirty days xx
Please sponsor Beatrice to be Beatrice. She's doing it every day and needs a new chair in April to keep going. There's a wide range of other expenses on the horizon too. A new Wheelchair vehicle, standing frames and so on. The new chair alone is £23,142. Any help you can give will be most appreciated xxxxx.
Here's our original fundraising quest from 2010. She's still with us and she's still awesome!
Beatrice is our beautiful five year old daughter. She is bright and full of life, always wanting to explore the world around her. Beatrice is always happy and ready to greet new people with a smile and a wave.
In July 2010 we received the news that Beatrice has Type II SMA (Spinal Muscular Atrophy). This, amongst other things, means she'll never walk. Gutting, to say the least. It's taken us a while to get used to this (Beatrice doesn't seem overly bothered!!), but we're finaly coming to terms with what it will mean for us - Adaptation of house, change of vehicles - All going to be expensive!
Added to this, we've found out that our local PCT won't fund an appropriate powered chair for Beatrice. One of the key attributes of children with SMA is that they're smart - really smart. I suppose it's a bit of balance. Limited mobility at a young age, however, can limit opportunities for learning and exploring the child's environment. Therefore early access to mobility is imperative - we want Beatrice to have as close to the same mobility as a normal toddler and this can be achieved through a powered chair with height adjustment - but it doesn't come cheap - £20,000. And we have to change the chair every 5 years, so this is an everlasting campaign so that once we’ve got her mobile, we can keep her mobile! Money raised goes towards equipment/services and anything else that can help improve Beatrice's quality of life.
All donations are made with a non-binding condition that the money will go toward Beatrice.
We can get there with your help - she'll keep whizzing round for a long time :-)
Lots of love,
Andrew, Amy, Beatrice and Henry xxx
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