My sister Beth Rye has been suffering from an extremely rare inner ear condition called SSCD since June 2013. After 18 months trying to get a diagnosis, 14 weeks in a hospital bed, and two failed operations we were left with very few options in the UK. Since July 2014 Beth has been completely house bound and now spend days confined to her bed.
Beth has suffered for over two years - we can now help get her life back. Beth is currently in Boston receiving what will be the life changing treatment she needs.
For more details on the condition visit:
Or watch my fundraising video:
We have already ran 5km runs, hosted horse racing nights, cake sales and much more all to contribute to the cost of Beth's treatment. This has enabled us to raise over £40,000 to go towards the cost of her USA treatment.
Since Beth has been in Boston she has had to stay in hospital for much longer than was initially expected. This will incur a greater financial cost for us therefore we want to raise as much as we can to contribute to this.
It is likely that Beth will need follow up appointments in Boston - incurring a greater financial cost. Anything we raise over our target will be used to set up a organisation that will help to raise awareness of SSCD.
I plan to continue to fund raise up to the Birmingham Half Marathon in October which I shall be competing in.
I also want to thank everyone that has donated to the cause so far - we wouldn't be here without your support! We have moved from You Caring to Just Giving as we can benefit from gift aid. This is because of our partnership with the Rotary Club that have recognized Beth as an individual charitable cause.