My wife Susan has Primary Sclerosing Cholangitis (PSC), a rare liver disease that has no cure. As well as liver deterioration (in some cases leading to liver failure and liver transplantation for those lucky enough to get a donor organ) P PSC sufferers often have associated autoimmune diseases and also have a significant increase in the risks of bowel, liver and pancreatic cancers.
On the day Sue was diagnosed back in 2009 we were told very little by the hospital and had so many questions about what it meant for us as a family. Living with PSC is very tough. It’s hard to cope with the many symptoms that affect all aspects of your life, whilst knowing that things could take a dramatic turn for the worse at any point.
The PSC Support charity offered us a lifeline. It gave us access to expert information on the disease, face-to-face Q&A sessions with leading research scientists and links to others in the same boat. Without this help you can feel very isolated in a sea of scary online articles.
The charity also funds research into PSC, which is vital because as the disease is so rare it’s hard to get funding from drug companies.
Run entirely by volunteers, the charity also promotes issues around PSC including organ donation. Your financial donation will enable PSC Support continue to make a real difference to families like us.
I’m very proud of my wife and how she copes with this disease day to day. I’m also very proud to have assembled a team of riders to take on this epic ride to raise funds and awareness of PSC Support and the great work it does. Please give what you can.