Together we can beat Early Onset Frontal Temporal Dementia!!
Please help me complete my mission for 2019 to raise as much money as possible through the Alzheimer’s Society. This will fund pioneering research, raise awareness and provide support for those with the condition, their family and friends who currently no matter how hard they try gradually loose the person they love.
How? I am taking off my slippers getting off the sofa to complete 3 totally terrifying and challenges that will push me to my limits both physically and mentally around the UK.
National 3 Peaks Challenge - 15th and 16th June 2019 - 3 Mountains 24 hours - Scotland, England and Wales with 3 of my closest friends Deborah Turner, Stephanie Thourgood and Rebecca Meyrick. Go Girls!! Nothing like starting small.
Sky Dive - 27th July 2019- Jumping 12000 feet out of a plane to totally terrify me, I hate heights!! My lovely mum Claire Pearse will also be joining me - a jump so close to all our hearts.
THE BIG ONE!! My Dementia Journey –10 crazy challenges in 10 days!!! 2nd to 11th October 2019
Travelling the UK, see me ditch my cake and pizza comforts to complete 10 crazy challenges to raise awareness including the world’s fastest zip wire, undertake a cycle challenge , abseil a landmark, canoe part of a Scottish canal, sail a yacht as well as lots of other surprises along the way to finish day 10 by completing the London Marathon Memory Walk pushing myself to my absolute limits.
Why? Early Onset Dementia typically affects people aged 45 to 65, it doesn't discriminate and can affect anyone. Brain tissue dies and this affects people’s memory, personality, identity and behaviour. It is a life limiting degenerative condition for which currently there are no treatments or cures resulting in a short life expectancy and results in people loosing their lives and leaving loved ones way too soon.
In 2017 my dad at 61 was diagnosed with Frontal Temporal Dementia and although loved very much he is no longer the dad I spent my life knowing. My mum has gone from being a wife to a carer for their retirement and we are unable to help him as his condition deteriorates and he struggles more and more with everyday life. In our case and many others it has been found to be genetic and I have been told that unless a treatment can be found I too will definitely develop the condition in the future which in turn heartbreakingly gives my children a 50 percent chance of having the condition.
Whilst there are currently no cures for early onset dementia there is hope!!!!!!!!
There is a really good amount of research being undertaken by medical experts who are working tirelessly to develop treatments and by giving any donation no matter how big or how little, together we can stop this totally cruel condition for generations to come.
Life is for living!!!!!! Thank you love Hannah and family xx
