Your friends are fundraising. Don't miss out, opt in.

177 %
£3,511.00
raised of £1,975 target
by 95 supporters
Donate
Hayley  O'Rourke  avatar
Hayley O'Rourke

Raising Money For Duchenne UK

5 of us are doing a skydive on Saturday 4th August for Duchenne UK because research is vital for finding a cure

177 %
£3,511.00
raised of £1,975 target
by 95 supporters
Donate

Duchenne UK

We fund medical research into Duchenne to end this disease in ten years

Charity Registration No. 1147094

Story

My beautiful son Ciaran aged 2 has just been diagnosed with Duchenne Muscular Dystrophy. It is the most common fatal genetic disease diagnosed in childhood, almost always affecting boys.      

Duchenne is a neuromuscular condition caused by the lack of a protein called dystrophin (this protein is vital for muscle strength and function). It is a muscle wasting disease and sufferers are unlikely to live past the age of 30.

Research is vital for finding a cure please donate whatever you can give so that we can work to eradicate Duchenne Muscular Dystrophy altogether.      

5 of us will be jumping out of a plane from 10,000ft in order to raise much needed funds for Duchenne Uk please help us to help save the worlds strongest boys. 

DMD will not beat us.                            Together we are stronger.

Skydive:- Saturday 4th August 2018 

Photos

2

Supporters

95