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Hi, I am Hazel, I am 12 years old and I have a rare genetic condition called Xeroderma Pigmentosa (XP for short!) meaning I can’t go outside without full body protection from the sun.
XP is a condition that affects the body’s ability to repair UV damage to the skin from the sun or other sources of UV light such as some light bulbs.
I’m raising awareness and money for the XP Support group by doing a sponsored climb of Ben Nevis. At over 1300m high it’s Britain’s highest mountain. This will be a serious challenge and a step up from Ben Lomond which I climbed last year.
I had wanted to do this in October 2019 but am now planning to do it in the spring of 2020.
Looking forward to the challenge, thanks for anything you are able to donate.
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