107 %
£1,073.75
raised of £1,000 target
by 31 supporters
Donate
Sally Meikle-Janney avatar
Sally Meikle-Janney

Amber's HSP Fundraising

We are doing a fitness event and cake sale for Hereditary Spastic Paraplegia Support Group because We want to raise money and awareness for HSP

107 %
£1,073.75
raised of £1,000 target
by 31 supporters
Donate

Hereditary Spastic Paraplegia Support Group

We need all the help and support we can get to fund research and change lives

Charity Registration No. 1109398

Story

Three years ago Amber began to signs of a rare neurological condition that affects the muscles. Hereditary Spastic Paraplegia. 

Amber now walks using either crutches or a walking frame, or she propels herself in her wheelchair for longer distances.

We want to bring awareness for this condition and raise money to support the Hereditary Spastic Paraplegia charity (UK Registered Charity No: 1109398). This condition affects 1 in 10,000 people.

HSP is a degenerative condition of the upper motor neurones. This affects the nerves located in the brain controlling voluntary movement, they deliver signals to the lower motor neurones located in the spinal cord. These spinal motor neurones send messages to the muscles. In HSP this doesn’t happen and it causes spasticity and weakness in the muscles. Over time this will get worse.

Other symptoms are exaggerated reflexes, poor balance and an abnormal gait. Bladder problems and excessive fatigue are also associated with this condition.

There is no treatment to stop, prevent or cure HSP but some relief can be found from regular physiotherapy and medicines as well as surgery to release muscle contractures.

Please support us at Total Fitness Huddersfield next Saturday and Sunday (the 18th and 19th of April) for the launch of the new Les Mills UK releases. Bring your pennies, bring a friend, join in our classes and buy some cakes.
Thanks, Sally and family


Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Photos

2

Supporters

31