Funding is needed for research on the causes and treatments. The support groups like Juvenile Dermatomyositis Research Group and Myositis Support Group have been invaluable to my sister and many others.
Steroids have caused Niamh to put on weight but this has meant she still be active. In addition to the daily dose of drugs she now has a full day every month in hospital for an intravenous infusion.
Despite being one of the toughest marathons I should still get around Snowdonia quicker than one of Niamh's hospital trips! Please take a moment to give generously helping support Niamh and other families affected by this debilitating disease.
Gift aid costs nothing but gives extra money.