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111 %
£501.23
raised of £450 target
by 36 supporters
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Howard Booth avatar
Howard Booth

Howard's Snowdonia Marathon 2013 for Juvenile Dermatomyositis

running one of the toughest marathons for Myositis UK because of the their support for Juvenile Dermatomyositis

111 %
£501.23
raised of £450 target
by 36 supporters
Donate
  • Event: Snowdonia Marathon 2013, 26 Oct 2013

Myositis UK

We raise funds for research to help improve treatments & diagnosis

Charity Registration No. 327791

Story

Juvenile Dermatomyositis is a disease with no cure and affects 3 in a million children, my niece was diagnosed a year ago and her story is not straight forward.

Funding is needed for research on the causes and treatments.  The support groups like Juvenile Dermatomyositis Research Group and Myositis Support Group have been invaluable to my sister and many others.

Steroids have caused Niamh to put on weight but this has meant she still be active.  In addition to the daily dose of drugs she now has a full day every month in hospital for an intravenous infusion.

Despite being one of the toughest marathons I should still get around Snowdonia quicker than one of Niamh's hospital trips!  Please take a moment to give generously helping support Niamh and other families affected by this debilitating disease.

Gift aid costs nothing but gives extra money.

Photos

3
  • Finished, with Niamh
  • Niamh

Supporters

36
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