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June Clark

Julian's Leaving Collection for The Maddi Foundation

Fundraising for The Maddi Foundation
£1,830
raised of £500 target
by 47 supporters
Donations cannot currently be made to this page
Leaving Collection for The Maddi Foundation, 31 May 2018
Participants: Leaving Collection for The Maddi Foundation
The Maddi Foundation

Verified by JustGiving

RCN 1174374
We raise funds for SPG15 medical research to find a cure for this rare disease

Story

Thanks for taking the time to visit our JustGiving page to help with funding for publicity for Maddi to bring her case to the attention of researchers and academics who may hold the key to finding a cure.  She is the only known person in the UK suffering from this illness.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

About the charity

The Maddi Foundation

Verified by JustGiving

RCN 1174374
The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.

Donation summary

Total raised
£1,830.00
+ £243.84 Gift Aid
Online donations
£1,830.00
Offline donations
£0.00

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