Niemann-Pick type C is a rare, devastating neurodegenerative disease that affects mostly children but also adults. Currently there is no cure and very sadly, people affected with this disease have a short life expectancy. It is an inherited disease, and therefore, in some families  multiple members are afflicted.  Niemann-Pick type C is a rare disease that affects all populations worldwide, with currently 90 individuals affected in the UK.

The Charity, Niemann-Pick UK (NPUK) does amazing work in providing vital support to the patients and their families 24/7. Without their work, the public awareness of this disease would be almost non-existent. NPUK is part of an international alliance  of NP charities (INPDA)  who work to raise awareness and facilitate networking among scientists and doctors worldwide, and thus help develop life-saving treatments for this life-limiting disease.

I've been volunteering and attending the annual Niemann-Pick family meetings ever since I was 12  years old. I've met some amazing people at these meetings over the years; this is my way of trying to give something back. The money I raise will be used to support the families affected by this disease and help support vital research to find effective treatments. 

I have never done any long distance cycling, so I am training hard! Please support me if you can, it's for an incredible cause that needs your help!

For further information about Niemann-Pick:

Niemann-Pick UK: http://www.niemann-pick.org.uk

INPDA: http://inpda.org