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Deborah Mann avatar
Deborah Mann

OACS Charity - Gala and Reception

Raising Awareness of Fetal AntiConvulsant syndrome for O.A.C.S. because its time to understand their daily challenges

19 %
£195.00
raised of £1,000 target
by 5 supporters
Donate

O.A.C.S.

We Support Families with Kids with FACS to Comming soon Community Groups & Holidays

Charity Registration No. 1116497

Story

Thanks for taking the time to visit my JustGiving page.  Both myself and Karen Buck hope that with your support we can raise a greater awareness of Fetal Anti-Convulsant syndrome, Rare Diseases and Multi-Disciplinary Complex Disabilities.  To do this we are holding: 

Reception: Acknowledging the challenges of  

  • Fetal Anti-Convulsant syndrome
  • Rare Diseases
  • Multiple, Complex Disabilities 

With talks given by: 

  • Alistair Kent OBE
  • Rebecca Bromley ClinPsy Phd

Gala:  

Karen Buck and Deborah Mann have children with FACS.  The journey of a FACS mum is very challenging.  These mums have felt frustrated for so long now due to the difficulties of supporting their children with a man made rare syndrome, caused by the medication they had taken.  

Both Karen and Deborah have come together to ensure that those affected by Anti-Convulsant medication are heard, and that the many problems they face are understood.  Some of these problems relate to having a rare disease, others relate to the many facets of FACS as each child has so many health problems; so that each child is a complete individual in their experience, often also being an unacknowledged carer.


  


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