Thanks for taking the time to visit my JustGiving page. Both myself and Karen Buck hope that with your support we can raise a greater awareness of Fetal Anti-Convulsant syndrome, Rare Diseases and Multi-Disciplinary Complex Disabilities. To do this we are holding:
Reception: Acknowledging the challenges of
- Fetal Anti-Convulsant syndrome
- Rare Diseases
- Multiple, Complex Disabilities
With talks given by:
- Alistair Kent OBE
- Rebecca Bromley ClinPsy Phd
Karen Buck and Deborah Mann have children with FACS. The journey of a FACS mum is very challenging. These mums have felt frustrated for so long now due to the difficulties of supporting their children with a man made rare syndrome, caused by the medication they had taken.
Both Karen and Deborah have come together to ensure that those affected by Anti-Convulsant medication are heard, and that the many problems they face are understood. Some of these problems relate to having a rare disease, others relate to the many facets of FACS as each child has so many health problems; so that each child is a complete individual in their experience, often also being an unacknowledged carer.