Matthew was born prematurely at 34weeks with a condition called Gastroschisis where his abdominal wall did not close therefore his bowel was trapped on the outside of his body. After birth he was immediately transferred to Alder Hey children's Hospital where he underwent emergency surgery to put his bowel back inside his body. At 18hrs old Matthew went back to theatre unfortunately the bowel had a lack of blood supply meaning it had to be removed. Matthew was left with 30cm of small bowel and 2/3 of his large bowel,he had a stoma for the first year of his life, he had a central line fitted which is a plastic tube that sits next to the heart, this was fitted to give total parental nutrition (TPN). During his short life Matthew has had numerous line infections that have led to his central line becoming septic and needing to be removed. In August 2016 Matthews central line split and needed to be removed, the decision was made not to replace it. We managed a family holiday and he went in the sea for the first time at 3years old with his sister Lily.
On 29th October every parents worse nightmare happened, whilst out shopping with mum Becky and Lily Matthew collapsed and suffered a cardiac arrest, resuscitation was done initially by Becky then 2 complete strangers a Dr and a paediatric nurse took over so Lily could be comforted as she was witness to everything. Emergency services were quickly on the scene and Matthew was attached to a defibrillator, he was found to be in ventricular failure and need to be shocked.
One month on Matthew is still in hospital, cardiologists can not find a cause for his arrest other than possibly his bowel and an electrolyte
imbalance. No Dr will say it will never happen again only put in preventatives, Matthew has been started on beta blockers, James and Becky are to be trained in paediatric life support and how to use a defibrillator in the event Matthew has another cardiac arrest.
Hand on heart charity are very kindly lending us a defibrillator for 6 months so we can go home. We are as a family asking if people could see it in their hearts to help us too raise enough money so we could buy our own defibrillator and ensure Matthew can live a normal life to the best of his ability just like everyone else.
Many thanks James, Becky, Lily and Matthew
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