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Jamie Watson avatar
Jamie Watson

Derby Ramathon 2015 for Fibrous Dysplasia Support Society UK

Funds towards a medical conference in Oxford 2015 for FIBROUS DYSPLASIA SUPPORT SOCIETY because My daughter has this syndrome

75 %
£379.76
raised of £500 target
by 17 supporters
Donate
  • Event: Derby Ramathon 2015, 07 Jun 2015

FIBROUS DYSPLASIA SUPPORT SOCIETY

We support sufferers of bone disease to help improve lives and understanding

Charity Registration No. N/A

Story

Hello again!!

I have set up this page because my family asked me to as they wanted to give towards this cause. I said I hadn't when they asked as I feel guilty for repeatedly pestering people so please don't feel obliged. 

The FDSS UK have arranged for the world expert in Charlotte's condition to come over from America in October and meet and talk to firstly sufferers and their families and then to hold a medical master class to meet doctors from the UK so they can all learn and work together for research purposes.

FDSS are a group of people who banded together in 2007 who are all affected or have affected family members and is totally funded by donations. They are paying for this to happen and I wanted to contribute anything I could towards it.

Thank you


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