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Jerry Lane avatar
Jerry Lane

Jerry Lane

I'm cycling from 'London to Paris' in September for Action for A-T because they do a fantastic job & need our utmost support.

131 %
£1,317.00
raised of £1,000 target
by 33 supporters
Donate
  • Event: Blackbushe to Paris Cycle, 14 Sep 2017 to 17 Sep 2017

Action for A-T

We fund medical research to find a cure for the rare disease A-T

Charity Registration No. 1145303

Story

I'm cycling over 200 miles in 3 days from London to Paris in September 2017, with a few BCA colleagues to raise money for Ataxia Telangiectasia (A-T) a rare, neurodegenerative, inherited disease that affects many parts of the body and causes severe disability.  

A-T is progressive and affects the cerebellum (the body's motor control centre) and, in about 70% of cases, weakens the immune system as well, leading to respiratory disorders. The condition first shows itself in early childhood, i.e. the toddler stage. The symptoms are lack of balance, slurred speech and perhaps a more than normal number of infections.  All children at this age take a little while to develop good walking skills, coherent speech and an effective immune system so it may be some years before A-T is properly diagnosed. On top of the severe physical disabilities children with A-T must face, 1 in 4 children with A-T will develop cancer or sever lung disease and more than half will die before they are out of their teens.

For more information about Action for A-T please visit www.actionforAT.org or you can also watch a short film and read Lilly's story by clicking here. 

I'm looking for your generosity and support to raise money for this worthy cause. Thanks for your support and for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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