I'm cycling over 200 miles in 3 days from London to Paris in September 2017, with a few BCA colleagues to raise money for Ataxia Telangiectasia (A-T) a rare, neurodegenerative, inherited disease that affects many parts of the body and causes severe disability.
A-T is progressive and affects the cerebellum (the body's motor control centre) and, in about 70% of cases, weakens the immune system as well, leading to respiratory disorders. The condition first shows itself in early childhood, i.e. the toddler stage. The symptoms are lack of balance, slurred speech and perhaps a more than normal number of infections. All children at this age take a little while to develop good walking skills, coherent speech and an effective immune system so it may be some years before A-T is properly diagnosed. On top of the severe physical disabilities children with A-T must face, 1 in 4 children with A-T will develop cancer or sever lung disease and more than half will die before they are out of their teens.
I'm looking for your generosity and support to raise money for this worthy cause. Thanks for your support and for taking the time to visit my JustGiving page.
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