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John Lamin

John's SMIKE for Battle Batten

I am doing a Scottish Coast to Coast bike ride for Batten Disease Family Association because I want to raise funds for Sarah and Andrew Dawkins

£820.00
raised by 28 supporters
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Batten Disease Family Association

We fund research and support families to find a cure to Batten disease

Charity Registration No. 1084908

Story

Thanks for taking the time to visit my JustGiving page.

In 2005 Hucknall twins Freddie and Louie were born perfectly normal to friends of mine, Sarah and Andrew. In 2007 they were diagnosed with autism and a few years later they became completely blind.

Batten disease is a cruel degenerative neurological condition. There has been no research since 2008 because not enough people suffer with it. Scientists are waiting to carry on research, they just need £20,000 to start. I am helping them to get there. Please read their incredible story at www.battlebatten.com, and help me raise as much as possible.

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