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£1,542.00
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Joshua Tapp avatar
Joshua Tapp

Running London Marathon 2014 for PSC Support

Running the London Marathon for PSC - Support because they provide enormous support for PSC sufferer

77 %
£1,542.00
raised of £2,000 target
by 6 supporters
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  • Event: Virgin London Marathon 2014, 13 Apr 2014

PSC - Support

We fund medical research to help find a cure for PSC

Charity Registration No. 1175427

Story

Hello, thanks for taking the time to look at my page and for those who are able to sponsor. Through Virgin Money Giving the donations will be quickly processed and passed to the charity. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this.

I am running this Marathon to raise both money and awareness of Primary Sclerosing Cholangitis (PSC) a chronic liver disease whereby the bile ducts become narrowed from inflammation and fibrosis. Overtime the bile ducts become blocked and cause a variety of symptoms; ultimately in some patients leading to biliary cirrhosis, portal hypertension, and liver failure.

The exact cause of PSC is currently unknown and there is no known curative treatment, or treatment which is known to slow the progression of the disease. This is why raising money and awareness of Primary Sclerosing Cholangitis is so vital.

My girlfriend, Maxine who has PSC, is in currently on the liver transplant list because her disease is now at the stage where her liver is starting to fail, receiving a liver transplant is the only hope she, and many other PSC patients have of becoming well again. I urge you to consider discussing organ donation with your loved ones (details below) and joining the 31% of us who are currently on the donor register.  I know Maxine and her family receive enormous support from PSC Support and hopefully the money and awareness raised form this event will be of great help!

Find out more about the charity from their website here...

 

http://www.pscsupport.org.uk

Organ Donation information...

http://www.organdonation.nhs.uk

And follow Maxine's blog here...

http://maxinimax.wordpress.com

 

All the best

Josh

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