My little joshy was an incredible little warrior who sadly passed away at 11 weeks old after complication with his heart. We have been fundraising since in his honour.
Joshua was diagnosed with a rare heart condition at his 21 week scan, Hypoplastic Left Heart Syndrome. Hlhs is where the left side of the heart does not develope. You are given three options 1. Abortion 2. Palliative care 3. Three open heart operations from birth to 3-4years old and possible transplant at any age! Many do not live to see there first birthdays.
Echo are a wonderful charity who provide support to children and their families with heart conditions at the Evelina. They have supported us for the last 7 years even after Joshy died and we will continue to support them in his honour!
On the 17th September I will be taking part in the London 2 Brighton bike ride with my friends Angie and Richard, which is 86km (54miles) long with a whopping hill at the end!
Following the bike ride I'll be doing my second skydive, jumping out a plane at 12,000ft.