79 %
£1,582.00
raised of £2,000 target
by 66 supporters
Donate
Josie Craig avatar
Josie Craig

Josie's Istanbul Marathon page

I am running the Istanbul Marathon for Joseph's Goal because my gorgeous nephew, Mikaere, has NKH

79 %
£1,582.00
raised of £2,000 target
by 66 supporters
Donate
  • Event: Istanbul Marathon, 12 Nov 2017

Joseph's Goal

Joseph Michael Kendrick is 7 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

More information at www.teammikaere.com

My cute as a button little nephew, Mikaere,was born with Nonketotic Hyperglycaemia (NKH). It’s a rare metabolic disorder with no cure and limited treatment options. Only 500 children live with the disease worldwide. 

With NKH Mikaere suffers from frequent seizures and since birth has been in and out of the hospital. It's a terminal condition so unfortunately we don't know how long he will be with us, but he is a little fighter and I want to fight for him too! 

So I am going to be running my very first marathon in Istanbul on the 12th November 2017 to help raise money towards Joseph's Goal, the UK's only NKH charity. I've been training for the marathon since May and it has been quite a challenge! Running in 30 degree heat (I hate to complain...but!), being caught out in numerous storms, getting lost for 2 hours in the back streets of Istanbul, endless hills and weaving my way through some of the 15 million people that live here in Istanbul! 

As you can see, this is, and will be a huge challenge for me so I would be eternally grateful if you could show your support to Joseph's Goal, a charity close to my heart. Any donations will go towards research into NKH, which will  have a positive and direct affect on the future for my nephew Mikaere and others who suffer from the same condition. 

Thank you! 

Josie x

Photos

5
  • +3

Supporters

66