Our beautiful Hugo died peacefully in my arms just after midnight on Saturday 30th June. We are heartbroken. We love him so and he will be with us, and part of us, forever. He was cuddling me and Peter all day but his breathing suddenly deteriorated in the early evening and he was taken to icu but his lungs couldn’t cope. His heart stopped beating gradually while I was cuddling him in close with Peter beside me. We will forever treasure the time we had together and all the love he brought to us. He was the bravest, smiliest boy and there is an extra little star twinkling down on us all now.
Hugo was 71 days post his transplant and had had every possible post chemo / transplant complication but somehow managed to combat them and come through, eventually, with a smile. We are so grateful that we all had hope for Hugo’s recovery until the very end. His last week was full of smiles and cuddles, giggles and standing up. He was even babbling a little more and seemed to have a renewed determination.
Dear Toby does understand that Hugo has died and cannot come home. We explained to him that Hugo’s warmth and laugh and spirit has gone to be a twinkling star in the sky. Toby said he wanted to throw the star in the bin and make Hugo into a real boy. But we have since been to visit Hugo’s body with Toby so he can say goodbye. He blew Hugo a kiss and told him he loved him. Peter, Toby and I are spending lots of time together and we have our families with us. We are so lucky to have each other.
A service to celebrate Hugo’s life will be held at St Nicholas Cathedral, St. Nicholas Sq, Newcastle upon Tyne NE1 1PF at 2pm on Friday 13th July, followed by a reception in the Cathedral’s East Chapel. All are welcome. No black ties.