This is my little mate Josh - he’s one of my favourite 9 year olds and is pretty much the bravest boy I know. James, Evie and I have been lucky enough to know Josh and his family for 10 years as part of our NCT group and we love them to bits.
Josh, lovingly known as Squash to us all, has an extremely rare genetic condition called FOX G1 and it’s impact on Josh and his family has been beyond words. Numerous operations, treatments, 24 hour care and medication, respite homes, disability aids and house adaptations are the tip of the iceberg, not to mention coping with Josh’s tracheostomy, wheelchair, stomas and regular planned and unplanned trips to hospital. Heroes walk among us and the Jones family are my Incredibles.
FOX G1 is so rare that research is in its infancy. Please help me to help my friend and the families of those with beautiful ‘foxes’.
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