In June 2013 my friends (Tom & Sue Barnley) youngest son Harry was diagnosed with one of the most aggressive forms of Muscular Dystrophy, Duchenne. Harry has recently enjoyed his 5th birthday just like any other 5 year old. Unfortunately by his 10th birthday he will be in a wheelchair and his upper body will then begin to shut down due to this rare and painful condition leaving him locked inside his own body. As a muscular degenerative disease eventually his heart will fail, almost certainly before he is 30. The most difficult part - there is no cure, it will happen and it is 100% fatal.

The Muscular Dystrophy Campaign is the leading UK charity focused on muscular dystrophy. They are dedicated to finding treatments and cures and improving the lives of adults and children affected by the condition. As well as providing funding for world class research they also provide practical information, advice and support, campaigning to bring about change and raise awareness.

So for now I am looking to raise awareness and start my fundraising for Harry. Please give generously and thanks for taking the time to visit my Just Giving page.

Donating through Just Giving is simple, fast and totally secure. Your details are safe with Just Giving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity