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kelly hayward

kelly's page

Fundraising for TAG
£361
raised of £200 target
by 26 supporters
Donations cannot currently be made to this page
Event: Milton Keynes Marathon 2017, on 1 May 2017
TAG

Verified by JustGiving

RCN 1164158
We support those affected by Arthrogryposis to understand the condition and meet others

Story

Any one that knows me will  know that my daughter has a condition called arthrogryposis, she was born with this although  when I was pregnant drs where sure Eden had a different condition that they Said she had no chance of life.  I found out about TAG while researching What the  Drs had told us. I sent them a email.  I very quickly got not only a reply but also a wonderful hope giving phone call that altho didn't stop me spending my pregnancy worried it did give us the hope that there could be light at the end of a very dark tunnel.  they told me about online groups that helped  so much and still do! TAG  also arrange yearly family fun days which are a wonderful  way to meet adults and children with the same condition as  Eden that we would never has otherwise met. This is not only good for me but also great for Eden and my other children . The charity is small and run by wonderful volunteers. So I hope that doing this run can help keep this charity going so that old and new familys can continue to get the Wonderful support they often. 

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About the charity

TAG

Verified by JustGiving

RCN 1164158
At The Arthrogryposis Group we are able to offer local level support to people living with Arthrogryposis Muliplex Congenita (AMC) or one of the 200 related conditions. We provide regular information and updates on care and treatment, and through our events we give excellent opportunities to meet others with arthrogryposis, their families and anyone involved in their care.

Donation summary

Total raised
£360.72
+ £52.50 Gift Aid
Online donations
£360.72
Offline donations
£0.00

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