Please support Jack and Fred raising money for Ollie's Army. Ollie and his sister Amelia (who is in Freddie's class) both have Battens Disease. A truly devastating, fatal diagnosis that no parent should ever hear for their children. The boys want to raise money and awareness for the cause so thank you for looking at their page. ***Please quote Ollie if you chose to donate***
Battens Disease is a life limiting condition. Children appear healthy at birth and symptoms for CLN2 Batten Disease begin between 3-4 years old. Children lose the ability to walk, talk and eat. They lose their vision completely and develop childhood dementia as well as uncontrollable seizures. The disease progresses rapidly with children becoming completely dependent on parents/carers by the ages of 5-6 years old. The life expectancy of a child with CLN2 Batten Disease is between 6 and 12 years old.