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Kerrie Shelley avatar
Kerrie Shelley

Kerrie's Abseil

I am going to abseil Spinnaker Tower on 03/04/15 for Cardiomyopathy UK because they support people like me!

256 %
£770.00
raised of £300 target
by 30 supporters
Donate

Cardiomyopathy UK

We provide support and information to anyone affected by cardiomyopathy

Charity Registration No. 1164263

Story

On the 3rd of April 2015 I will be abseiling Spinnaker Tower to raise money for The Cardiomyopathy Association. Cardiomyopathy is a heart muscle disease that affects 1 in 500 of the population and is the most common medical cause of sudden death in under 35 year olds. The Cardiomyopathy Association are an incredible charity that work on educating medical professionals about the disease and provide knowledge and support to patients and their families. 

In March 2014 I was diagnosed with LVNC, a form of heart muscle disease which has no known cure. I had been blacking out regularly, which increased as I got older, and eventually I was sent for tests which led to my diagnosis.  The Cardiomyopathy Association (http://www.cardiomyopathy.org) have been incredible over the last year. They have provided me with the information and support I needed at an incredibly delicate time for both me and my family, and helped us to remain positive. They have put me in touch with patients similar to me, provided a source of endless knowledge, and they have provided a helpline where patients are able to speak to a specialist nurse. Along with providing patient support The Cardiomyopathy Association help to increase knowledge of Cardiomyopathy in the medical world, so that patients are tested for conditions like this sooner when reporting symptoms related to that of the condition, helping to save lives.  

Without our donations newly diagnosed patients, like myself, would not receive the support they need at a terrifying, life-changing time of their lives. The charity has been invaluable to me since my diagnosis, and by raising funds for them we'll be able to continue their incredible hard work and support newly diagnosed patients when they're at their most vulnerable. 

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