raised by 2 supporters
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Jayne Hughes

Jayne's page

Fundraising for Amy and Friends

raised by 2 supporters
  • Event: Paris to London, 20 Apr 2013 to 24 Apr 2013

Amy and Friends

Amy & Friends provide support for the health and well being of sufferers of Cockayne Syndrome and their families and carers. We provide an annual members retreat where families spend time in each other's company and meet leading doctors and researchers. We also provide a family support worker.

Charity Registration No. 1119746


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